I have started this site to help educate people about tuberous sclerosis and it’s effects on the child and family. 

We first discovered that Michael had this disease when he was almost 2 months old.  We had seen him zero in on his hand a few times, but never really thought too much about it, until one evening when I was breast feeding him, his body just stiffened up.  This was 18 years ago, but I remember it like it was just yesterday.  Read the rest of this entry »